Guest Post #12: The Journey Inspired (Coping with Depression with Severe Fatigue)

Amanda, from the blog Mandibelle16, is a frequent commenter on this blog. Her own blog features her poetry and creative writings as well as articles about mental illness and her walk with depression. Amanda has suffered from Depression with severe fatigue since 2009. The following describes her first episode of severe Depression (which also featured auditory hallucinations) and its aftermath, and her long journey to wellness. But I’ll let her About page speak for itself. She is a talented writer and poet.

Mandibelle16 – About the Author
https://mandibelle16.wordpress.com/about-the-author/

mandibelle16

Amanda is a writer, blogger, and student from Edmonton, Alberta, Canada. She began blogging four-years ago to improve her writing skills and share her thoughts on several topics including, her experiences with mental illness.

Over time, Amanda’s blog has developed into much more than it’s original use. She has taken Editing and Creative Writing courses from Simon Fraser University and the University of Alberta to improve her writing and editing skills, in addition to her Bachelor of Arts Degree in English Literature received in May 2007. Her next step educationally, is developing a portfolio for the University of British Columbia for a Master’s in Fine Arts in Creative Writing. Only twenty-five percent of students make it in this online program and Amanda is hoping to be one of these students in May 2017.

Amanda also has taken blogging, poetry, writing, commenting, and photography courses through WordPress. She looks to improve her writing anywhere she is able. Amanda enjoys poetry and has been learning various forms of poetry from the website Shadow Poetry. Each new type of poetry is fun and challenging. She writes poetry from WordPress The Daily Post, word prompts and her own experiences, as well as participating in National Poetry Writing Month each year in April.

Amanda has been expanding and fine tuning her writing skills in fiction. She has recently been writing short stories and submitting them to literary magazines (etc.) as well as writing Flash Fiction for four different photo and/or word prompts each week. Amanda also participates in other writing prompts or challenges called 3 Line Tales; she also writes a different themed list each week; and participates in a photography prompt called Echoes of My Neighbourhood.

Moreover, Amanda is writing up her first draft of her first novel called How Was Last Night For You. The novel has been in process for a few years but is close to completion of the first draft. After the first draft, she will be working on corrections offered by another already published writer (with great thanks!) to complete a second draft, before hiring an established editor. Whether the book will be self-published or not is yet to be determined.

In addition, Amanda enjoys the Edmonton sports scene. She is a huge Oiler’s fan (NHL) even though the team seems to only be picking-up great draft picks and not making it to the playoffs since 2006. She is also a huge CFL fan of the Edmonton Eskimos who won the Grey Cup this past November 2015. Amanda also enjoys walking and doing yoga. She loves dogs, reading, shopping, and spending time with her wonderful friends and family.

Amanda also has suffered from a Mood Disorder (Depression) since 2009. She has tried countless medications and few have worked for her due to sensitivities and allergies to many medications. Amanda was in hospital when the she initially fell ill in 2009 for three-weeks and this last Summer for three-weeks to do a major medication change. The latest medication change was successful and Amanda is feeling more energy then she has in years.

Amanda suffers from severe fatigue due to her depression as well as insomnia. Her new medication has helped her in both areas. If you would like to talk to her about her mental issues or your own, please feel free; she is always willing to provide what help she can in that area with her experience over the past eight-years.

THE JOURNEY INSPIRED: COPING WITH DEPRESSION WITH SEVERE FATIGUE
By Amanda, Mandibelle16

depressed_woman

My story begins when I was twenty-three-years old. I had my first ‘real’ job after university and I had recently advanced from the role of receptionist to construction administrative assistant at the commercial development company where I worked. I had been in the administrative role in construction three-months before I became ill. It was Christmas time and I felt worn out. I thought I simply needed to take a few days off work to rest. Although I had no idea what was happening to me, I began to experience the onset of a psychotic episode in December 2008.

My episode began with a person from work (for instance) talking to me as they usually would and then afterwards I would hear an echo after they finished speaking. This echo consisted of this person’s voice altering and them saying something to me that was extremely mean. I knew something was not right with what I was hearing, but I had no idea what was happening to me. My current psychiatrist and I still don’t know the reason I had a psychotic episode. I wasn’t unusually stressed, using drugs, and I wasn’t grieving or experiencing emotional loss.

Work became extremely difficult for me to attend. Often, I would end the day crying. I also had difficulties concentrating on my work because my thoughts were going around in my head at such a rate that I couldn’t organize my thoughts properly.

At home I was having difficulty sleeping and I had begun to lose weight because I refused to eat much. I told my parents what was happening to me. My Mom kept track of my symptoms as they occurred. She had some experience with mental illness from an extended family member.

My second last day of work, we had a fun office party at a delicious restaurant. Later, we went to a different restaurant at night for drinks. The day had been a better one for me but it ended in tears. I thought I overheard a guy in my work saying something mean about me and I left the second restaurant crying.

I came back to work one last day but I couldn’t control my emotions which were all over the place. A lady at work drove me home and since that time I have not been able to return to work. I’m still embarrassed how I broke down that day. I had no control over myself and despite the fact my episode was eight-years-ago now, I still feel ashamed for how I acted that last day.

scream

On December 24, 2008 my Dad and I sat waiting to get into a Doctor at a clinic. The Doctor prescribed me Ativan to aid me with sleep and for anxiety. My parents also took me to the University of Alberta free psychiatric clinic. I went there a few times and they diagnosed me with having a psychotic episode with auditory hallucinations.

Eventually, I ended up with help from my Dad and the U of A clinic, admitting myself to the hospital because I was hearing suicidal voices. I didn’t want to kill myself but I was hearing voices whom were telling me to end my life.

Before I went into hospital, I spent three-weeks at home hallucinating and the thoughts in my head kept going round. I would sit down on the couch and for hours become immersed in my thoughts. Then suddenly, it would be lunch time and my Mom would be home from work to check on me and ensure I would eat some lunch and take my medication.

I was under several delusions and one delusion was that food didn’t belong to me so I wouldn’t eat because I thought that was stealing. During my episode I lost about twenty pounds in a month. I also began to feel physical sensations at times moving up my arms.

Additionally, I stopped taking care of myself. It was difficult to force myself to take a bath or shower and often the moment I thought about it, I would forget I needed to accomplish that small task. I didn’t understand why I wasn’t taking care of my appearance and hygiene because I’ve always been finicky about taking care of myself.

I was in hospital three-weeks and when you are hearing voices from people, the hospital is a terrifying place to be. Hearing voices occurs in a person experiencing a psychotic episode because the synapsis in their brain misfires.

If you can recall any thought or idea in your head that you’ve ever learned, seen on TV, or read about, these ideas or thoughts become misdirected in your brain. A person’s worst thoughts come through as voices they hear coming from other people, the TV, Radio, or out of nowhere. For instance, when I was ill I would hear the announcers on a Basketball game on TV and it would sound like they were only talking about me and not the game.

The Doctor I had in hospital took me off the antipsychotic I had been on from the University of Alberta clinic, and slowly put me on a newer antipsychotic drug called Invega. Suddenly, my thoughts were clear and I wasn’t hearing any voices echoing a person talking to me. The thoughts in my brain stopped circling. I have never had a psychotic episode since, and I pray I never do.

When I returned home, I experienced a depressive episode. I lost my energy and began to have severe fatigue. Although, my fatigue levels have changed from awful to manageable, they are something I still deal with today. Fatigue is different than being sleepy. It has a physical and mental aspect and once you run out of energy a person can do nothing but lie down until they have more energy from resting. In this time, I developed a mood disorder that is likely depression.

fatigue
Severe fatigue is a common problem with severe depression.

I also lost some cognitive function which I would later regain. My handwriting for example, was childlike. It took me three-days to fill out my application to my insurance company for disability which was thankfully approved. Reading a simple young adult chapter book such as Twilight or Harry Potter, was extremely challenging at first. It was a couple of years before I could read more than simple adult books and longer still to work back up to being able to read for long periods and read difficult material such as textbooks and literary novels.

I met my present psychiatrist in April 2009 and she took me off of the Invega once we knew I was safely out of the psychotic episode. My psychiatrist switched me to a new antipsychotic because my old one left me with intense muscle pain in my shoulders and neck. For eight-years my Psychiatrist and a Psychiatric Nurse, helped me try tons of medications such as anti-psychotics, antidepressants, stimulants, and sleep medications. I participated in psychiatric testing so we could measure my improvement up to three-years after the episode occurred. We tried an array of medications but the majority had little effect.

Moreover, I had a consultation with a sleep psychiatrist whom I saw every six months. The sleep medications he gave me were a short-term solution to a sleep-disorder that had developed. I had insomnia and had both trouble falling asleep and staying asleep.

The results of trying all this medication was excess weight gain. At first, because I had lost weight in my psychotic episode, I needed to gain a few pounds but now I’m thirty-five pounds over a healthy body weight.

My severe fatigue doesn’t allow me to do cardiovascular activity intense enough to burn fat. I was extremely fit before my episode so being overweight is something that has always upset me because I don’t have much control over it. I eat healthy and in small portions but it doesn’t make much difference. Not to mention, when my mood disorder became worse, it was even harder to exercise.

I believe my health improving this last year, is due to letting myself be admitted into hospital for a medication overhaul. Sleeping at night had become nearly impossible. My Doctor had me go off my sleeping medications and on a new antipsychotic called Clozapine which makes a person extremely sleepy when they take it. Clozapine has to be monitored closely in patients because it can cause increased heart rate and increase white blood cell count.

I worked my way up slowly to the right dose of Clozapine for my body and it wasn’t easy. The second and third day after going on a new dose of Clozapine, I would feel awful. Then my Doctor would increase the dose and the cycle would repeat until we reached the correct dose for my body.

I spent a miserable weekend at home in a hot house in July on too large a dose of Clozapine. Surprisingly, that’s how we found my perfect dose. Now I only have to go for blood work to check my white blood cell count every so often. But Clozapine allowed me go off of a larger dose of antidepressants and sleeping pills. I can sleep amazingly well at night, even though I sleep to 11:00 am because of the medication.

By November 2015, my energy had increased and I was reading plenty again, writing more, and able to take my last Residential Design class. I could last at night for four or five hours meeting with friends. By January I noticed my concentration had substantially improved. Even though my physical stamina is low, I’m able to do yoga and go for a short walk at times which is a huge step up for my physical health from the last two or three years.

A wonderful aspect of Clozapine is that it is the only antipsychotic that actually heals your brain. I don’t know if I’ll ever be as carefree and able as I was at twenty-three-years-old, but each month I experience improvements to my health. Combined with a supplement program that is helping me to lose weight, I’m doing fantastic for a woman who suffered such a terrible psychotic episode and has lived with mental illness for eight-years.

My goals of late have been entering my writing into writing contests for different magazines to have my writing published. I write fiction, poetry, nonfiction and a bit of everything. I have been blogging for four-years as well. In the beginning, it was to improve my writing skills back to what they were when I finished my English BA.

Now I focus on improving my writing creatively. I’m writing a fictional novel on a curse, a sea witch, and two main characters who fall in love. I’m also participating in National Poetry Writing Month in April. You can check out my blog at: http://www.mandibelle16.wordpress.com.

I have gone back to my roots, to my love of literature and the written word. I adore writing and it makes me whole. It’s what I’m meant to do. I’m looking at applying for an online MFA at UBC in creative writing. I believe my family and friends, creativity, positivity, and faith in God, have lead me through difficult times in my life. They have allowed me to find light when everything seems dark.

Mandibelle16.(2016) All Rights Reserved.

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About luckyotter

Recovering from BPD and C-PTSD due to narcissistic abuse from childhood. Married to a sociopath for 20 years. Proud INFJ, Enneagram type 4w5. Animal lover, music lover, cat mom, unapologetic geek, fan of the absurd, progressive Catholic, mom to 2, mental illness stigma activist, anti-Trumper. #RESISTANCE
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10 Responses to Guest Post #12: The Journey Inspired (Coping with Depression with Severe Fatigue)

  1. mandibelle16 says:

    Thank you so much for sharing my story. Both my about page and mental illness article!

    Liked by 1 person

  2. mandibelle16 says:

    Reblogged this on Mandibelle16 and commented:
    Here is an article I wrote on my struggle with mental health. I tried to be very honest with it. I hope it helps someone out there, or at least makes anyone unsure about mental health issues more aware. Thank you Lucky Otter for posting my piece and you also get to read my bio from My About page as well!

    Liked by 1 person

  3. Scout says:

    Thank you luckyotter for sharing Mandi’s story. I’m sure others will be helped because of her sharing her struggles with depression. It’s so detailed and I learned so much reading it. She is such a good writer and tells her story very well.

    Liked by 1 person

  4. Mandibelle… your story is breathtaking. I am amazed by your honesty and your ability to write so coherently about your terrible ordeal. You are a very talented writer.

    I had a similar psychotic break when I was fourteen, that lasted until I was sixteen. It was like waking up and finding myself in a real life horror story.

    ((HUG))

    Liked by 1 person

  5. This makes me think of my earlier years with mental illness which also happened to me when in my twenties(but was probably actually going on longer). I got myself diagnosed at age 25. Things were different back then than they are these days, but, some things remain the same and always will.

    Some of mine happened at the workplace but I was also falling short at home with my duties. It was confusing because some of it was real, and some of it wasn’t.

    What I mean by that is I was also picked on in the workplace. In my case I knew I was being treated unfairly, that I was being gossiped about, and that the blame for things that went wrong seemed to always be placed on me. When I would complain about the unfair treatment, my co-workers would call me too sensitive or even paranoid. And flatly denied talking about me even though I would hear my name being whispered nearby. Yet, I just knew it wasn’t in my head but what was I to do? So, I succumbed to it. Accepted there was something wrong with me and entered treatment just as many of my co-workers already were themselves.

    Years later, a caring and honest co-worker(at the same place, I still worked there), came to me privately and told me that it in fact hadn’t been in my head. That they in fact WERE trying to get me fired just that they couldn’t find any reasons to. Imagine that, they were looking for reasons all the while denying my claims to them.

    While I know I had some quirks of my own and that I wasn’t the most efficient player on the team, why on earth did it have to be made so confusing? I think sometimes people will behave this way in groups, that’s why. And apparently they weren’t all so well themselves. But it can be that way anywhere. Just that it’s usually not talked about.

    What would I have done different then if I knew what I know now? I would have found a way to be more certain that what I was thinking was going on either was or wasn’t and then probably would have rode it out until the tide changed. Why call them on it because if they were doing it it’s not like they would be likely to admit it. And lastly, I should have kept how it bothered me more to myself. Fair? No. The way some people can act? Yes. Did the meds and therapy help me? Yes.

    I’m not saying this is what’s going on with you, but, it did remind me of my earlier days and I wanted to tell you about it.

    Liked by 1 person

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